東灣布利桑頓居民梁嘉欣(Janet Liang)20日宣布,成功找到一名合適的骨髓捐贈者。剛做完將近一個月化療的她,目前已出院休息,並等候最後的檢查報告確定何時進行捐贈手術。

25歲的梁嘉欣在Facebook上發表一則簡訊,表示在不斷搜尋骨髓資料庫後,終於找到一名合適度9分(滿分10分)的男性捐贈者,對方也表示願意接受捐贈手術。主治醫生也試圖從臍帶血庫中尋找適合的捐贈者,並將在近期決定該使用何種移植手術。

梁嘉欣說,她是全美使用新化療藥物的12名病患之一。僅一個化療周期中,癌細胞就從82%驟降到2%。梁嘉欣感謝全世界關心、幫助她的朋友,希望大家一起慶祝好消息,她也會盡全力完成這場馬拉松式的挑戰。

在主治醫生的建議下,梁嘉欣一個月前抵達休士頓癌症中心,嘗試最新的藥物治療。好朋友王蕾說,梁嘉欣已出院休息,狀況良好,目前正在南加州探訪朋友。

美亞骨髓捐贈會(AADP)羅皓兒指出,雖然捐贈者還未經過詳細體檢,不過為了和時間賽跑,雙方將同時進行最後檢查,等檢查報告兩周後出爐,就可以決定手術形式。

梁嘉欣2009年就讀洛杉磯加大四年級時,因急性淋巴細胞白血病發病而休學治療。今年1月底,她在病房自拍影片後上傳到Youtube網站,請求民眾登記骨髓捐贈,救她一命。該影片迄今有37萬網友點閱,連職籃明星林書豪都在臉書上呼籲球迷參加捐贈登記。

羅皓兒表示,梁嘉欣和Jack Chin尋找到合適捐贈者的消息讓人精神一振,但目前灣區仍有一名28歲的越華裔青年陳坤(Khon Tran)正在尋找適當的骨髓捐贈者。從註冊登記、樣本採集到進入骨髓捐贈資料庫需時四周,羅皓兒希望這些好消息可以鼓勵更多華裔民眾進行骨髓登記,幫助更多病患。

by 陳巧倫
June 23, 2012
World Journal (世界新聞) 

(Source: worldjournal.com)

"

Dear co-survivors: Happy news abound. I am the 12th patient in the US to undergo this immunotherapy drug — and I am finally in remission. My blasts went from 82% to 2% remaining in only one cycle of the drug.

I also have finally found a match - a 9/10 male donor. It’s not perfect, but I can’t complain! But now we are also looking for matches in the cord blood registry. My doctors and I will decide which route to go.

Wherever you are, please turn up the radio and let’s have a global dance party! :)

Thank you everyone for all your hard work. Now it’s on me to finish the marathon.

"
— Cheers, Janet

An article by UC Davis’ student newspaper The California Aggie about Janet:

When UCLA student Janet Liang was diagnosed with acute lymphoblastic leukemia (ALL) in 2009, she, her family and the doctors were the only people who knew about it.

According to the National Marrow Donor Program, ALL is a cancer of the white blood cells. Lymphocytes are a type of white blood cell used by the body to fight infections, and bone marrow makes blasts – uniformed cells – that usually develop into these lymphocytes. However, the disease inhibits the development of normal blasts and, thus, the combat of infections.

After a year and a half in remission and a tragic relapse in 2011, Liang decided to tell others about her situation. While still in the hospital, Liang filmed and uploaded  a video recording her plea for help to YouTube.

“I am scared of dying because of everything that I will leave behind,” Liang said in the video. “I don’t know if I’ll ever find my bone marrow match in time.”

The video went viral. Now, people all around the world know about Janet Liang, her disease and her desperate need for a perfectly matched bone marrow donation.

A campaign called Helping Janet was launched to help Liang find usable bone marrow. Although over 22,000 people have registered as donors, none of them are a perfect match. The “Helping Janet” website states that the deadline for Liang to receive a bone marrow donation is this month.

Liang, who graduated from UCLA with a degree in international development and has a passion for reading and writing, dedicated the campaign in memory of Michelle Maykin, who suffered from the same disease as Liang and initiated a grassroots campaign for her own perfect match.

People from all over the world have gotten involved, including UC Davis students Vincent Trinh and Alyssa Ng. Trinh, a senior English major, stumbled upon Liang’s plea for help on a social media website.

“We are both UC students, we’re both from the Bay Area, we’re both Asian Americans and we’re both activists within in our community,” Trinh said regarding his initial interest in Helping Janet. “Someone as sweet, talented and kind as her should not have to go through this.”

Trinh’s first act of involvement was coordinating a bone marrow drive at UC Davis. He teamed up with many Asian American organizations such as Lambda Fraternity and the Asian American Donor Program. They used many social media outlets such as Facebook, YouTube and Twitter to optimize the movement on campus. Trinh helped to register nearly 200 people within the course of two days.

Ng, a senior managerial economics major who has also aided such bone marrow drives, said that the complexity of the situation lies in the fact that Liang needs bone marrow from a person of a similar race.

According to Ng, Liang is having a hard time finding a match because Asian Americans make up only 7 percent of the entire bone marrow registry.

"In order for someone like Janet to find a perfect bone marrow match, her donor must be Chinese,” Trinh said. “Considering how diverse our Asian American community is and that we make up only 7 percent of the total registry, her chances are very slim.”

Liang has won several awards for her plight and perseverance, including the Spirit of Hope Award from Asian Miracle Marrow Matches, the Unsung Hero Award for 2012 from Asian Pacific Americans for Progress and the Juanita Haugen Community of Character Award for 2012.

Trinh and Ng both consider Liang to be a very talented writer and actively read her personal blog at janetgliang.com.

Helping Janet is uniquely linked to many forms of social media. The campaign has a blog, helpingjanet.tumblr.com; a website, helpingjanet.com; and a Facebook page, facebook.com/helpingjanet.

Registering to become a donor can be done online. Asian Americans and those of Chinese descent are especially encouraged to do so.

by Sara Islas
June 6, 2012
The California Aggie, UC Davis 

(Source: theaggie.org)

A lovely mini-documentary featuring Helping Janet’s first benefit concert: PERFECT 10!

Thanks for coming out to the concert and making a difference, everyone!

(Source: helpingjanet.com)

A beautiful short featuring Arden Cho by The Jubilee Project to remind us all to cherish life’s simple moments and to raise awareness about leukemia and joining the bone marrow registry.

For more information: 

Just 3 DAYS left before the PERFECT 10, a very special benefit concert to fund Janet’s treatments and raise money for community organizations helping to register bone marrow donors! All of us are still searching for Janet’s perfect 10/10 match.
LINEUP: Lady Danville - Victor Kim - Andrew Figueroa Chiang & the Blazing Rays of the Sun - Fung Brothers - Trebles & Blues
DETAILS:DATE: Monday, May 28TIME: 7 - 10:30 pmVENUE: Grand Star Jazz Club at 943 Sun Mun Way, Los Angeles, CA 90012 (map)TICKETS: $20 presale (purchase at EventBrite)
 Facebook event | Website | Tickets Just 3 DAYS left before the PERFECT 10, a very special benefit concert to fund Janet’s treatments and raise money for community organizations helping to register bone marrow donors! All of us are still searching for Janet’s perfect 10/10 match.
LINEUP: Lady Danville - Victor Kim - Andrew Figueroa Chiang & the Blazing Rays of the Sun - Fung Brothers - Trebles & Blues
DETAILS:DATE: Monday, May 28TIME: 7 - 10:30 pmVENUE: Grand Star Jazz Club at 943 Sun Mun Way, Los Angeles, CA 90012 (map)TICKETS: $20 presale (purchase at EventBrite)
 Facebook event | Website | Tickets

Just 3 DAYS left before the PERFECT 10, a very special benefit concert to fund Janet’s treatments and raise money for community organizations helping to register bone marrow donors! All of us are still searching for Janet’s perfect 10/10 match.

LINEUP
Lady Danville - Victor Kim - Andrew Figueroa Chiang & the Blazing Rays of the Sun - Fung Brothers - Trebles & Blues

DETAILS:
DATE: Monday, May 28
TIME: 7 - 10:30 pm
VENUE: Grand Star Jazz Club at 943 Sun Mun Way, Los Angeles, CA 90012 (map)
TICKETS: $20 presale (purchase at EventBrite)

 Facebook event | Website | Tickets

Janet was finally admitted to MD Anderson yesterday. She will begin treatment today.

All Team Janet supporters,

TEAM JANET is hosting PERFECT 10, a very special benefit concert to fund Janet’s treatment and raise money for community organizations helping to register bone marrow donors! Please join us for this special night next Monday and support Janet’s fight for her life! All of us are still searching for Janet’s perfect 10/10 match.

LINEUP
Lady Danville - Victor Kim - Andrew Figueroa Chiang & the Blazing Rays of the Sun - Fung Brothers - Trebles & Blues

DEETS:
DATE: Monday, May 28
TIME: 7 - 10:30 pm
VENUE: Grand Star Jazz Club at 943 Sun Mun Way, Los Angeles, CA 90012 (map)
TICKETS: $20 presale (purchase online at EventBrite)
URL: helpingjanet.com/CONCERT

See y’all there! And thanks for the continued outpouring of love and support. We would never have registered over 20,000 donors without the help of each and every one of you.

P.S. This will be an 18+ event.

P.P.S. Please reblog widely and share this Facebook event with friends and family.

"URGENT: Since last Thursday morning Janet’s cancer cells has advanced up to 80% of her body. She is currently being under critical care. Please keep her in your prayers."
"Dr. Lin Teams Up with Fung Brothers, AHMC Health Foundation to Help Janet Liang"

MONTEREY PARK – Inside the lobby of the AHMC International Cancer Center, Dr. Matthew Lin, an Orthopedic Surgeon and co-founder of the Cancer Center, joined Monterey Park Vice Mayor Mitchell Ing, the Fung Brother’s David and Andrew, Tammy and Tony of Team Janet, Geoge Chen President of the Taiwan Benevolent Association of California, Jennifer Renshaw President of the Overseas Chinese Business Exchange, Philip Cohen President of the AHMC Health Foundation, and David Batista CEO of Garfield Medical Center to help raise awareness for Janet Liang who is affected with leukemia and in need of a bone marrow transplant.
“Thank you Vice Mayor Ing and the Fung Brothers for joining us today to raise awareness for Janet who is battling leukemia and needs our help to find a bone marrow donor,” said Dr. Matthew Lin. 
“Asians as a whole are under-represented when it comes to bone marrow transplants compared to other ethnic groups, we need to change this trend if we want to help save the lives of those we love.”
In 2009, Janet Liang was diagnosed with acute lymphoblastic leukemia while majoring in international development studies at UCLA.  After undergoing several aggressive rounds of chemotherapy, Janet achieved full remission in 2010. Unfortunately, in December 2011, doctors informed her that she had relapsed and is now in need of a bone marrow transplant. To learn more about Janet please visit helpingjanet.com.
"Dr. Lin Teams Up with Fung Brothers, AHMC Health Foundation to Help Janet Liang"

MONTEREY PARK – Inside the lobby of the AHMC International Cancer Center, Dr. Matthew Lin, an Orthopedic Surgeon and co-founder of the Cancer Center, joined Monterey Park Vice Mayor Mitchell Ing, the Fung Brother’s David and Andrew, Tammy and Tony of Team Janet, Geoge Chen President of the Taiwan Benevolent Association of California, Jennifer Renshaw President of the Overseas Chinese Business Exchange, Philip Cohen President of the AHMC Health Foundation, and David Batista CEO of Garfield Medical Center to help raise awareness for Janet Liang who is affected with leukemia and in need of a bone marrow transplant.
“Thank you Vice Mayor Ing and the Fung Brothers for joining us today to raise awareness for Janet who is battling leukemia and needs our help to find a bone marrow donor,” said Dr. Matthew Lin. 
“Asians as a whole are under-represented when it comes to bone marrow transplants compared to other ethnic groups, we need to change this trend if we want to help save the lives of those we love.”
In 2009, Janet Liang was diagnosed with acute lymphoblastic leukemia while majoring in international development studies at UCLA.  After undergoing several aggressive rounds of chemotherapy, Janet achieved full remission in 2010. Unfortunately, in December 2011, doctors informed her that she had relapsed and is now in need of a bone marrow transplant. To learn more about Janet please visit helpingjanet.com.

"Dr. Lin Teams Up with Fung Brothers, AHMC Health Foundation to Help Janet Liang"

MONTEREY PARK – Inside the lobby of the AHMC International Cancer Center, Dr. Matthew Lin, an Orthopedic Surgeon and co-founder of the Cancer Center, joined Monterey Park Vice Mayor Mitchell Ing, the Fung Brother’s David and Andrew, Tammy and Tony of Team Janet, Geoge Chen President of the Taiwan Benevolent Association of California, Jennifer Renshaw President of the Overseas Chinese Business Exchange, Philip Cohen President of the AHMC Health Foundation, and David Batista CEO of Garfield Medical Center to help raise awareness for Janet Liang who is affected with leukemia and in need of a bone marrow transplant.

“Thank you Vice Mayor Ing and the Fung Brothers for joining us today to raise awareness for Janet who is battling leukemia and needs our help to find a bone marrow donor,” said Dr. Matthew Lin. 

“Asians as a whole are under-represented when it comes to bone marrow transplants compared to other ethnic groups, we need to change this trend if we want to help save the lives of those we love.”

In 2009, Janet Liang was diagnosed with acute lymphoblastic leukemia while majoring in international development studies at UCLA.  After undergoing several aggressive rounds of chemotherapy, Janet achieved full remission in 2010. Unfortunately, in December 2011, doctors informed her that she had relapsed and is now in need of a bone marrow transplant. To learn more about Janet please visit helpingjanet.com.

(Source: votedrlin.com)

Janet has just been listed as one of Angry Asian Man's 30 under 30! Read below.

30 under 30: janet liang

Janet Liang

Age: 25

Cancer Patient, Asian American Bone Marrow Advocate

Why she’s influential: Because she’s turned her personal life-and-death struggle into a nationwide movement for bone marrow registry in our community.

At age 22, while majoring international development at UCLA, Janet Liang was diagnosed with acute lymphoblastic leukemia. During her treatment, with the help of friends, she launched the “Team Janet” campaign, urging fellow Asian Americans to register to become a bone marrow donor.

In June 2010, after enduring eight rounds of high-dosage chemotherapy, she left the hospital in complete remission and began a regimen of maintenance therapy that kept her cancer-free for a year a a half. She finished her studies, graduated college, traveled, and got a job. The future was bright.

Unfortunately, her cancer came back. But it hasn’t stopped her fighting spirit.

Janet has until June to find a perfect bone marrow match — her best option for a full recovery. At 25 years old, this is literally a matter of life and death. But she’s used her situation as an opportunity to create awareness about the severe dearth of registered bone marrow donors within the Asian American community.

Are you on Team Janet? She’s on a mission to register as many Asian Americans as possible. You could be the match that saves a life — maybe even Janet’s life. Her efforts have helped register nearly 20,000 donors, sparked a national awareness campaign, found life-saving matches for several patients, and hopefully find her own match soon. Sign up here.

The cast of White Frog, including Harry Shum Jr, Amy Hill, Joan Chen, Booboo Stewart, and BD Wong gives an urgent PSA to save Janet and other leukemia patients like herself.

We are officially down to approximately two weeks, and Janet still has NOT found that match. She will be finished with her 11th round of chemo this week. After getting a couple of days to rest, Janet will undergo another bone marrow biopsy to check if she is finally in her second complete remission. If she gets the green light, Janet will ABSOLUTELY need to have a match and be ready to go for her transplant. 

At this point, we’re still very hopeful, because a lot can happen in two weeks. She’s been having a rough time balancing her demands and returning messages promptly since she gets so many e-mails a day, but Janet’s been keeping all her co-survivors in her thoughts. 

These past few months have been an incredibly emotional, draining, stressful, hopeful, and inspiring for us here at Team Janet. 

Let’s give everything we’ve got in these remaining weeks. 

If you can organize a last minute drive at a great venue, please e-mail us at helpingjanet@gmail.com.

Thanks, co-survivors

San Francisco’s Mayor Edwin M. Lee has made this PSA with AADP to help spread awareness. With limited time left for Janet to find her match, please share widely and encourage people on the fence to register to save a life.

Janet only has two weeks left! Please encourage people to get registered!

Here’s a little health update for my Tumblr followers:

My LFT (liver function tests) levels are extremely high both, and I’m currently experiencing acute liver damage once again. I’ve been unable to proceed with my 11th round of chemotherapy to approach remission until this recovers. The liver inflammation is a side effect from aspariginase.

If it does not reach normal parameters by Thursday, I will be admitted to the hospital as an inpatient again for a tougher chemotherapy regimen. My hematologist-oncologist is currently trying to figure out my back up drug plan. I’ve been trying to drink wheatgrass shots and foot acupressure (complimentary therapies) to do whatever I can to bring these levels down, though most of it is out of my control. 

I’ve been struggling with ongoing nausea, abdominal pain, shortness of breath, fatigue and general weakness. But I’ve still been able to go out, and most people can’t see that I’m very sick. 

Please pray for protection of my liver and minimal side effects. Please pray for readiness of chemotherapy. Please pray for a miracle match.

Much love,

Janet